Before the start of the NephroQUEST project only a core dataset was collected: identification number, gender, The Extension of the Romanian Renal Registry From Liliana Garneata – Registry Director date of birth, RRT method, events (change in RRT method, recovery of renal function, death, transfer, lost to follow-up) and only aggregated data were reported to ERA-EDTA Registry. At that time the RRR staff included four technicians, supervised by two nephrologists who worked as advisors on a voluntary basis. Financial support from the NephroQUEST allowed the part-time employment of the clinician nephrologists. A statistician is still needed.
Since the start of the project the staff in the renal centres were trained and the databases in each centre were re-evaluated to include the cause of death. In addition, we started to make annual registry reports based on individual patient data starting with the year 2006. As a result we now participate in the ERA-EDTA Registry with individual patient data. Furthermore, under the auspices of the NephroQUEST project, new software was created allowing web transmission of the data. This new software, which is to be implemented this month, is user-friendly, includes clinical performance indicators and co-morbidity data, allows for self-control of the collected data by the centres and also allows automated data extraction from the centres’ databases. RRR’s objective for the end of the project was to also monitor the quality of RRT care. This now seems to be feasible given the progress we have recently made.

Liliana Garneata – Registry Director