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| ERA-EDTA President |
Jorge B. Cannata-Andia |
Oviedo, Spain |
| Registry Committee |
Carmine Zoccali (Chairman) |
Reggio di Calabria, Italy |
Giuliano Colasanti |
| Milan, Italy |
Bert van der Heijden |
| Rotterdam, The Netherlands |
Reinhard Kramar |
| Wels, Austria |
Torbjørn Leivestad |
| Oslo, Norway |
Fernando García López |
| Madrid, Spain |
Alison MacLeod |
| Aberdeen, Scotland |
Bénédicte Stengel |
| Villejuif, France |
Jane Tizard |
| Bristol, United Kingdom |
Christoph Wanner |
| Würzburg, Germany |
| Staff |
Kitty Jager |
| Managing Director |
Paul van Dijk |
| Medical Information scientist |
Ronald Cornet |
| Senior IT Specialist |
Friedo Dekker |
| Senior Epidemiologist |
Vianda Stel |
| Epidemiologist |
| Anneke Kramer |
| Medical Information scientist |
Annick van den Broek |
| Datamanager |
| Gita Guggenheim |
| Secretary |
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| Contributions as of May 1, 2005 |
|
 registries
sending selected aggregated data to be included in the annual
report |
 no
registry/no contribution/data not eligible for analysis |
Contact details |
| Postal address |
| ERA-EDTA Registry |
| Academic Medical Center |
| University of Amsterdam |
| Dept. of Medical Informatics, J1b-125 |
| P.O.Box 22700 |
| 1100 DE Amsterdam |
| The Netherlands |
| Visiting address |
| Meibergdreef 9 |
| 1105 AZ Amsterdam |
| The Netherlands |
| Phone: +31 20 566 7637 |
| Fax: +31 20 691 9840 |
| E-mail: erareg@amc.uva.nl |
| Website: www.era-edta-reg.org |
QUEST on the move: the 2nd QUEST Convention in Vienna |
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| From Carmine Zoccali, Chairman of the ERA-EDTA Registry | |||||||||||||||||
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As you may see in the accompanying figure (Fig. 1) Epidemiology & Clinical Epidemiology is considered a research area of very limited interest by the vast majority of European renal physicians. This is unexpected and to a certain extent perplexing for those who believe that clinical epidemiology is the basic science to modern medicine. The QUEST initiative, QUality EUropean Studies was started with the precise scope of enlarging the potential and the horizon of the ERA-EDTA Registry and to stimulate interest on epidemiology. I emphasise the substantive “initiative” rather than “project”. An initiative is something needed to set in motion, is a first step of a series of actions, the readiness to embark in new ventures. |
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| Carmine Zoccali | |||||||||||||||||
| QUEST work groups aiming to launch trials in Europe: a report by Christoph Wanner on the debate during the 2nd QUEST convention | |||||||||||||||||
| From Christoph Wanner, member of the ERA-EDTA Registry Committee | |||||||||||||||||
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Registry Newsletter No 7 announced the potential launch of a large trial in Europe and a first draft was discussed in Vienna, March 12, 2006 during the 2nd Quest convention. As underlined previously (1st QUEST convention, Toledo, Spain, March 2005) a trial should at best be prospective, should contain an intervention administered through randomization, therefore controlled, and should test for outcome or solid endpoints. Data gathering capacities of the Registry and overall feasibility should be guaranteed within the frame of a reasonable budget.
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| Christoph Wanner | |||||||||||||||||
| Information Bias | |||||||||||||||||
| From Kitty Jager, Managing Director of the ERA-EDTA Registry | |||||||||||||||||
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Information bias is a systematic error in a study that can arise because wrong information has been obtained about or from study objects. Such may be the case for exposure to risk factors or for disease. If the information is collected in categories this will lead to wrong classification, so-called misclassification. Examples of misclassification of exposure are: a PD patient being categorized as a high transporter, while being a low transporter, being coded as a light smoker while being a heavy smoker, being reported as having received sufficient Kt/V according to the guideline, whereas in reality the dialysis dose was too low. Some causes for misclassification of exposure status are imprecise measurement, patient’s self-report, interviewer bias or incorrect coding. |
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| Kitty Jager | |||||||||||||||||
The QUEST Initiative: Activity Report of the Anaemia Working Group (March 2005 - March 2006) |
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| From Jean-Pierre Wauters, on behalf of the QUEST Anaemia Working Group | |||||||||||||||||
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| QUEST Working Group on dialysis adequacy | |||||||||||||||||
| From Jeroen Kooman, on behalf of the QUEST Adequacy Working Group | |||||||||||||||||
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| Forthcoming issues | |||||||||||||||||
| Newsletter 9, July 2006 | |||||||||||||||||
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