 |
| ERA-EDTA President |
Francesco Locatelli |
Lecco, Italy |
| Registry Committee |
Carmine Zoccali (Chairman) |
Reggio di Calabria, Italy |
Giuliano Colasanti |
| Milan, Italy |
Bert van der Heijden |
| Rotterdam, The Netherlands |
Reinhard Kramar |
| Wels, Austria |
Torbjørn Leivestad |
| Oslo, Norway |
Fernando García López |
| Madrid, Spain |
Alison MacLeod |
| Aberdeen, Scotland |
Bénédicte Stengel |
| Villejuif, France |
Jane Tizard |
| Bristol, United Kingdom |
Christoph Wanner |
| Würzburg, Germany |
| Staff |
Kitty Jager |
| Managing Director |
Paul van Dijk |
| Medical Information scientist |
Ronald Cornet |
| Senior IT Specialist |
Friedo Dekker |
| Senior Epidemiologist |
Vianda Stel |
| Epidemiologist |
Annick van den Broek |
| Datamanager |
| Gita Guggenheim |
| Secretary |
 |
| Contributions as of May 15, 2004 |
|
 registries
sending selected aggregated data to be included in the annual
report |
 no
registry/no contribution/data not eligible for analysis |
Contact details |
| Postal address |
| ERA-EDTA Registry |
| Academic Medical Center |
| University of Amsterdam |
| Dept. of Medical Informatics, J1b-125 |
| P.O.Box 22700 |
| 1100 DE Amsterdam |
| The Netherlands |
| Visiting address |
| Meibergdreef 9 |
| 1105 AZ Amsterdam |
| The Netherlands |
| Phone: +31 20 566 7637 |
| Fax: +31 20 691 9840 |
| E-mail: erareg@amc.uva.nl |
| Website: www.era-edta-reg.org |
The QUEST initiative: a first step forward, clinical guidelines monitoring and entering a new era of Registry Research in Europe |
|
| from Carmine Zoccali, Chairman of the ERA-EDTA Registry | |
 |
The ERA-EDTA Registry is a joint venture of 32 national and/or regional registries. The basis of the European collaboration of registries is the common goal regarding data comparison, the need to offer a common response to public health questions in Europe and the willingness of sharing experiences. Our Registry collects RRT data on annual basis via national and/or regional renal registries. To increase compliance, the information asked is very limited. Basically the ERA-EDTA Registry includes data on gender, date of birth, cause of renal failure, date of the beginning of the first dialysis or renal transplantation, history of RRT with dates and changes of modality, treatment centre, date and cause of death and information concerning transfer from or to other renal registries. |
| Carmine Zoccali | |
| Read the slide presentations by Carmine Zoccali and Kitty Jager | |
The Quest initiative: a general framework by Carmine Zoccali |
|
| The Quest initiative: where we are, where we want to go, and the road that has been chosen by Kitty Jager | |
The Renal Data Finder |
|
| from Giuliano Colasanti on behalf of the Renal Data Finder Group | |
|
Electronic Data exchange among collaborating nephrology units is important for comparisons, audit, and to allow the build up of high quality clinical databases. We refer here about a multicenter project, actually ongoing between 20 Italian Renal Units.
|
The Third Biostatistics and Epidemiology Course - Gdansk, Poland 21-22 November 2004 |
|
From B. Rutkowski, Local Course Coordinator |
|
|
The Third Biostatistics and Epidemiology Course was organized by the Department of Nephrology, Transplantology and Internal Medicine of The Medical University of Gdansk on November 21-22, 2004. 26 participants from several Central and Eastern European countries took part in lectures and practical classes led by experts in the field. |
| Gdansk | |
The Second "Introductory Course of Epidemiology" - Toledo, Spain 13-15 March 2005 |
|
 |
On March 13th-15th the second ERA-EDTA course was held in Toledo, Spain. Fifteen European nephrologists attended the course. The program of the course followed the format developed for the first course in Rome with adaptations suggested by the previous participants and the course faculty. |
| Toledo | |
| Announcements | |
The third "Introductory Course of Epidemiology" will be held in Würzburg (Germany) on October 9-11, 2005. |
|
|
On October 9-11, 2005 the ERA-EDTA Registry organises the third ERA-EDTA Epidemiology Course in Würzburg, Germany. Professor Wanner is the host of this course. The first two editions were held in Rome, Italy (September 2004) and in Toledo, Spain (March 2005).
On the basis of surveys among course participants these courses can be considered to be a true success. This is a small class course and therefore interested persons are invited to contact immediately the course co-organizer and ERA-EDTA Registry Manager, Kitty Jager. |
| Würzburg | |
| More information on this course are available on | |
| http://www.ndt-educational.org/wurzburg2005.asp | |
| Registry activities during the ERA-EDTA Congress in Istanbul (4-7 June, 2005) |
|
| 4 June - QUEST expert Working Group meetings followed by a Business meeting for national and regional registries, 11.00 a.m. to 3.30 p.m. | |
| 5 June - ERA-EDTA Registry Report. CRR Auditorium 10.30 to 12.00 a.m. | |
| 6 June - Hands-on Course - Clinical Epidemiology. Museum 4. 10.30 to 12.00 a.m. | |
| More information are available on http://www.eraedta2005.org | |
| Forthcoming issues | |
| Newsletter 6, June 2005 | |
| Newsletter 7, September 2005 | |
| Newsletter 8, December 2005 | |
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