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ERA-EDTA President

Gérard M. London

Paris, France

  
Registry Committee

Christoph Wanner (Chairman)

Wuerzburg, Germany

  

David Ansell

Bristol, United Kingdom
   

Christian Combe

Bordeaux, France
   

Liliana Garneata
Bucharest, Romania
   

Faical Jarraya
Sfax, Tunisia
  

Pietro Ravani
Cremona, Italy
   

Ramon Saracho
Santa Cruz de Tenerife, Spain
   

Franz Schaefer
Heidelberg, Germany
   

Staffan Schön
Stockholm, Sweden
   

Enrico Verrina
Genoa, Italy
   
Staff
   

Kitty Jager

Managing Director, Senior Epidemiologist
   

Ronald Cornet

Senior IT Specialist
   

Friedo Dekker

Senior Epidemiologist
   

Vianda Stel

Epidemiologist
   
Marlies Noordzij
Epidemiologist
   
Karlijn van Stralen
Epidemiologist
   
Anneke Kramer
Medical Information Scientist
   

Moniek van den Luijtgaarden
Epidemiologist
   
 
contributors map
 
Contributions as of July 1, 2008
red registries contributing individual patient data to the ERA-EDTA registry database

orange registries sending selected aggregated data to be included in the annual report

white no registry/no contribution/data not eligible for analysis
 
 
 
Contact details
 
Postal address
ERA-EDTA Registry
Academic Medical Center
University of Amsterdam
Dept. of Medical Informatics, J1b-125
P.O.Box 22700
1100 DE Amsterdam
The Netherlands
 
Visiting address
Meibergdreef 9
1105 AZ Amsterdam
The Netherlands
 
Phone: +31 20 566 7637
Fax: +31 20 691 9840
E-mail: erareg@amc.uva.nl
Website: www.era-edta-reg.org
 
 

Introduction of the new Registry Committee 2009-2012

wanner

 Christoph Wanner

This summer the ERA-EDTA Registry Committee 2006-2009 resigned. In addition to Chairman Carmine Zoccali, who is succeeded by Christoph Wanner, the following Registry Committee members reached the end of their term: Reinhard Kramar (Austria), Torbjorn Leivestad (Norway), Alison MacLeod (UK), Fernando Garcia Lopez (Spain) and Jane Tizard (UK).

At the Meeting for national and regional registries on Friday May 22, 2009 during the ERA-EDTA Congress in Milan, Italy, the election of four new members of the Registry Committee took place. Based on the votes from national and regional registries, David Ansell (UK, second term), Pietro Ravani (Italy), Ramon Saracho (Spain), and Staffan Schön (Sweden) were elected. In addition, three new members were selected by the ERA-EDTA Council; Christian Combe (France, second term), Liliana Garneata (Romania), and Faical Jarraya (Tunisia). Finally, Enrico Verrina (Italy, second term) and Franz Schaefer (Germany) will represent the ESPN within the Committee.

The first meeting of the new Registry Committee took place in Bologna, Italy on October 4, 2009. We are looking forward to a fruitful cooperation in the next 3 years with our new Registry Committee.
      

Who is who at the ERA-EDTA Registry Office?

The ERA-EDTA Registry Office is located at the Department of Medical Informatics of the Academic Medical Center, which is part of the University of Amsterdam in Amsterdam, the Netherlands. The ERA-EDTA Council elected Christoph Wanner (Wuerzburg, Germany) as the Chairman of the Registry, while Kitty Jager is the managing director in the Amsterdam office. She leads a team consisting of three post-doc researchers (including the coordinator of the European Society of Paediatric Nephrology (ESPN)/ERA-EDTA Registry), two junior researchers, a data manager and a senior medical informatician and a senior epidemiologist who act as advisors.

Read more
 

Short announcements

The ERA-EDTA/ESPN Registry has gratefully received a grant from the ERA-EDTA Council for the next 3 years for consolidation of the registry. With the obtained funding the position of registry coordinator Karlijn van Stralen will be expanded. In addition, a data manager and PhD student will be hired so that more studies based on the paediatric data can be performed. An annual report will be published in Pediatric Nephrology, the journal of the International Pediatric Nephrology Association.

The Registry will participate in an FP7-project called SysKID. The 5-year project is expected to start on January 1, 2010. The Registry will participate in the Work Package on epidemiology of CKD. Within this Work Package the Registry will help to develop epidemiology methods and risk score calculators. In addition, it will make an inventory of all available data and studies running in Europe.

In cooperation with Charlie Tomson, David Ansell, Giovanni Cancarini, and Cecile Couchoud, members of the ERA-EDTA Registry staff are preparing a survey on when renal replacement therapy is started. The pilot phase of this study is currently being finalized and nephrologists throughout Europe can expect an invitation to participate in the survey within the next few months. For more information please contact the project coordinator Moniek van de Luijtgaarden: m.w.vandeluijtgaarden@amc.uva.nl.
 
ERA-EDTA Registry publications in 2009
  1. Kramer A, Stel VS, Zoccali C, Heaf J, Ansell D, Grönhagen‑Riska C, Leivestad T, Simpson K, Pálsson R, Postorino M, Jager KJ: An update on renal replacement therapy in Europe: ERA‑EDTA Registry data from 1997 to 2006. Nephrol Dial Transplant 2009;24:3557‑3566.
  2. Stel VS, Kramer A, Zoccali C, Jager KJ. The 2007 ERA-EDTA Registry Annual Report-a Précis. NDT Plus 2009;2:514-521.
  3. Noordzij M, Hooft L, Dekker FW, Zoccali C, Jager KJ. Systematic reviews and meta-analyses: when they are useful and when to be careful. Kidney Int 2009; 76: 1130-1136.
  4. de Jager DJ, Grootendorst DC, Jager KJ, van Dijk PC, Tomas LM, Ansell D, Collart F, Finne P, Heaf JG, De Meester J, Wetzels JF, Rosendaal FR, Dekker FW: Cardiovascular and noncardiovascular mortality among patients starting dialysis. JAMA 2009 28; 302: 1782-1789.
  5. Stel VS, Zoccali C, Dekker FW, Jager KJ: The Randomized Controlled Trial. Nephron Clin Pract 2009; 113: c337-c342.
  6. Euser AM, Zoccali C, Jager KJ, Dekker FW: Cohort studies: prospective versus retrospective. Nephron Clin Pract 2009; 113: c214-217.
  7. Noordzij M, Dekker FW, Zoccali C, Jager KJ: Study designs in clinical research. Nephron Clin Pract 2009; 113: c218-21.
  8. Tizard EJ, Verrina E, van Stralen KJ, Jager KJ: Progress with the European Society for Paediatric Nephrology (ESPN)/ERA-EDTA Registry for children with established renal failure (ERF). Nephrol Dial Transplant 2009; 24: 2615-2617.
  9. Grootendorst DC, Jager KJ, Zoccali C, Dekker FW: Screening: why, when, and how. Kidney Int 2009; 76: 694-699.
  10. Stel VS, Dekker FW, Ansell D, Augustijn H, Casino FG, Collart F, Finne P, Ioannidis GA, Salomone M, Traynor JP, Zurriaga O, Verrina E, Jager KJ: Residual renal function at the start of dialysis and clinical outcomes. Nephrol Dial Transplant 2009; 24: 3175-3182.
  11. Jager KJ, Zoccali C: Comorbidity data collection by renal registries--a remaining challenge. Nephrol Dial Transplant 2009; 24: 2311-2313.
  12. Tripepi G, Jager KJ, Dekker FW, Zoccali C: Diagnostic Methods 2 - Receiver Operating Characteristics (ROC) curves. Kidney Int 2009; 76: 252-256.
  13. van Stralen KJ, Stel VS, Reitsma JB, Dekker FW, Zoccali C, Jager KJ: Diagnostic methods I: sensitivity, specificity, and other measures of accuracy. Kidney Int 2009; 75: 1257-1263.
  14. Stel VS, Kramer A, Zoccali C, Jager KJ: The 2006 ERA-EDTA Registry annual report: a précis. J Nephrol 2009; 22: 1-12.
  15. de Mutsert R, Jager KJ, Zoccali C, Dekker FW: The effect of joint exposures: examining the presence of interaction. Kidney Int 2009; 75: 677-681.
  16. Couchoud C, Jager KJ, Tomson C, Cabanne JF, Collart F, Finne P, de Francisco A, Frimat L, Garneata L, Leivestad T, Lemaitre V, Limido A, Ots M, Resic H, Stojceva-Taneva O, Kooman J: Assessment of urea removal in haemodialysis and the impact of the European Best Practice Guidelines. Nephrol Dial Transplant 2009; 24: 1267-1274.
  17. Kramer A, Stel VS, Tizard J, Verrina E, Rönnholm K, Pálsson R, Maxwell H, Jager KJ: Characteristics and survival of young adults who started renal replacement therapy during childhood. Nephrol Dial Transplant 2009; 24: 926-933.
  18. Couchoud C, Kooman J ,Finne P, Leivestad T, Stojceva-Taneva O, Buturovic Ponikvar J,  Collart F, Kramar R,  de Francisco A, Jager KJ: From registry data collection to international comparisons: examples of haemodialysis duration and frequency. Nephrol Dial Transplant 2009; 24: 217-224.
 
Forthcoming issues
Newsletter 16, June 2010
 
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