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| ERA-EDTA President |
Gérard M. London |
Paris, France |
| Registry Committee |
Carmine Zoccali (Chairman) |
Reggio di Calabria, Italy |
David Ansell |
| Bristol, United Kingdom |
Christian Combe |
| Bordeaux, France |
Reinhard Kramar |
| Wels, Austria |
Torbjørn Leivestad |
| Oslo, Norway |
Fernando García López |
| Madrid, Spain |
Alison MacLeod |
| Aberdeen, United Kingdom |
Jane Tizard |
| Bristol, United Kingdom |
| Enrico Verrina |
| Genoa, Italy |
Christoph Wanner |
| Würzburg, Germany |
| Staff |
Kitty Jager |
| Managing Director |
Ronald Cornet |
| Senior IT Specialist |
Friedo Dekker |
| Senior Epidemiologist |
Vianda Stel |
| Epidemiologist |
| Marlies Noordzij |
| Epidemiologist |
| Karlijn van Stralen |
| Epidemiologist |
| Anneke Kramer |
| Medical Information scientist |
Annick van den Broek |
| Datamanager |
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| Contributions as of July 1, 2008 |
 registries
contributing individual patient data to the ERA-EDTA registry
database |
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Contact details |
| Postal address |
| ERA-EDTA Registry |
| Academic Medical Center |
| University of Amsterdam |
| Dept. of Medical Informatics, J1b-125 |
| P.O.Box 22700 |
| 1100 DE Amsterdam |
| The Netherlands |
| Visiting address |
| Meibergdreef 9 |
| 1105 AZ Amsterdam |
| The Netherlands |
| Phone: +31 20 566 7637 |
| Fax: +31 20 691 9840 |
| E-mail: erareg@amc.uva.nl |
| Website: www.era-edta-reg.org |
registries
sending selected aggregated data to be included in the annual
report 
| TO DOWNLOAD AND PRINT THE PDF VERSION OF THIS NEWSLETTER CLICK HERE | |||||||||||||||||
The EVEREST Study: Explaining variation in RRT through expert opinion secondary data sources and trend analysis |
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| From Fergus J Caskey, Kitty Jager, Robert F Elliott, Vianda Stel and Alison M MacLeod for the EVEREST Study group | |||||||||||||||||
Fergus J Caskey |
The EVEREST Study is a collaborative study under the umbrella of the QUEST initiative and has been formally endorsed by the ERA-EDTA and the ISN. The incidence of Renal Replacement Therapy (RRT) shows huge variation across the world. (1) Even amongst economically developed countries there are large differences: around 100 cases per million of the population (pmp) in the UK, Australia, New Zealand and the Netherlands; around 200 pmp in Germany and Greece; over 350 pmp in the US and more than 400 pmp in Taiwan. (1) While rates of hypertension and diabetes in the general population and progression of CKD to established renal failure (ERF) are no doubt important factors this variation (2-4), organisational and financial factors determining the availability of dialysis facilities are also likely to have a direct or indirect effect on patients’ pathways onto RRT around the world.
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The ESPN/ERA-EDTA registry – the new pediatric registry has made a successful start |
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From Karlijn van Stralen, Enrico Verrina, Jane Tizard and Kitty Jager |
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Sample size calculations |
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From Marlies Noordzij, ERA-EDTA Registry epidemiologist |
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The sample size is the number of patients or other experimental units included in a study. Pre-study calculation of the required sample size is warranted in the majority of quantitative studies. Usually, the number of patients in a study is restricted because of ethical, cost, and time considerations. However, if the sample size is too small, one may not be able to detect an important existing effect, whereas samples that are too large may waste time, resources and money. It is therefore important to optimize the sample size.
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| Marlies Noordzij | |||||||||||||||||
Announcements |
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Starting from January 2009 a new series of 20 articles on epidemiology will be written for Nephron Clinical Practice. The papers will discuss a broad variety of epidemiological and biostatistical topics and will be authored by investigators collaborating with the ERA-EDTA Registry located in Reggio Calabria, Italy, and Leiden and Amsterdam, the Netherlands. |
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In 2009 the ERA-EDTA Registry will perform an international survey on reasons when to start renal replacement therapy (RRT). With this survey we aim to determine European nephrologists’ current opinions about when to start RRT for ESRD in early referred adult patients. Furthermore, we aim to identify which clinical, social, and logistical factors influence this decision and which factors play a role in the decision not to start RRT. At present the questionnaire is being developed in cooperation with Charlie Tomson and David Ansell (UK), Cecile Couchoud (France), Giovanni Cancarini (Italy), Marlies Noordzij, Vianda Stel, and Kitty Jager (The Netherlands). Within a few months many European nephrologists will receive an invitation to participate in the study and we hope they will take a few moments to complete our questionnaire. If you have any questions regarding this study, please contact the study coordinator Moniek van de Luijtgaarden: m.w.vandeluijtgaarden@amc.uva.nl. |
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| Agenda of ERA-EDTA Registry activities: | |||||||||||||||||
• March 14-16, 2009 10th CME Introductory Course on Epidemiology, Brussels, Belgium |
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| Forthcoming issues | |||||||||||||||||
| Newsletter 14, May 2009 | |||||||||||||||||
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