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ERA-EDTA FLASH is the official ERA-EDTA E-NEWSLETTER

No 144, June 2018

 

Editor in Chief: María José Soler Romeo - Editorial Secretariat: Valentina Cocchi
Newsletter Design: Ilaria Martini

ERA-EDTA Headquarters - Via XXIV Maggio, 38 - 43123 Parma - Italy

 
Education
Research
Institutional
Association
 
Education

Leaders at ERA-EDTA 2018. The third of a four part video series is now live

Today, watch the interview with Makoto Kuro-o, a world leading expert who discovered a Klotho anti-ageing gene, talking about his presentations: ‘Klotho and endocrine FGFs – marker of CKD progression and cardiovascular complications’ and ‘How to increase serum Klotho concentration?’
Click here and select ‘Interview with Prof. Makoto Kuro-o’.
On the same page you can also access the slides, the recorded webcast and a press article of the presentation. Click here to access them. If you don’t have an ENP account, please create one here and click on ‘Log In / Register’ on the top right.
If you don’t have your badge number anymore, please write an email to support@e-materials.com
Stay tuned for the fourth part of the series ‘Leaders at ERA-EDTA 2018’ next week.

 
Fabry

Fabry: A unique disease—uniquely experienced by patients

Fabry disease is a rare, progressive multisystem disorder in which mutations in the gene for α galactosidase A lead to an accumulation of lipid substrates in a variety of cell types1. More than 1000 different mutations have been identified, contributing to remarkable variability in symptoms and disease course. This often has a strong impact on the renal system. Early signs such as microalbuminuria and proteinuria may be followed by gradual loss of renal function and end-stage renal disease as well as potentially severe cardiac and cardiovascular manifestations in untreated Fabry disease patients.1 As signs and symptoms are nonspecific, patients frequently go undiagnosed for a decade or more.1 To learn more, please visit FabryFacts.com.

1. Germain DP. Fabry disease. Orphanet J Rare Dis. 2010;5:30.

© 2018 Amicus Therapeutics Inc. All rights reserved.
PP-GA-US-0007-0318
 
Research
NDT article
Just published online: read the latest NDT article
Timing of maintenance dialysis initiation: Numbers vs. symptoms
The timing of initiation of dialysis remains within the realm of the art of medicine and should be individualised, guided by a careful and frequent clinical assessment of both numbers and symptoms in partnership with the patients and their caregivers.


Read more→
 
Institutional
Results of the 2018 ERA-EDTA Council Election (Copenhagen, Denmark)
New Ordinary Council Members (2018-2021)
The ballot elected new members from seven candidates who submitted their intentions to serve as members of the Council for the next three years (2018-2021).

 
The ERA-EDTA Congress just ended. Are you already missing it?
Watch an exciting video collecting all impressions of the 55th ERA-EDTA Congress held in Copenhagen (Denmark) on May 24-27, 2018.
Click here to watch the video.

 
Association
EKHA
Enough: Now is the Time for EU Action on NCDs

In light of the third United Nations High-level Meeting (HLM) on the prevention and control of Non-Communicable diseases (NCDs), taking place on September 27, 2018, the European Chronic Disease Alliance (ECDA) and the European Public Health Alliance (EPHA) urge the European Union Institutions to take action.

Read more→


 
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